Joy In Caregiving
Joy Walker - Caregiver Advocate, Writer
LBDA and Alzheimer's Support Lines

LBD Caregiver Link

Toll-free LBD Caregiver Link – 800.539.9767

LBD families and caregivers can connect directly on a regional basis, through the LBD Caregiver Link, featuring “Lewy Buddies.” “Lewy Buddies" are experienced LBD caregivers who share their time and experience with LBD families by:

Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD

Offering emotional support

Referring families to additional LBDA programs and services as appropriate for their needs.

While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA. They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body Dementia.

When calling or emailing the LBD Caregiver Link, you will speak with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion.

For caregivers who do not have Internet access or who wish to speak to someone, the toll-free accessline provides a link to experienced LBD caregivers. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.



Alzheimer's Association Helpline

The Alzheimer's Association's Helpline is a toll-free number that you can call 24-hours a day, 7 days a week to get information about Alzheimer's disease. Through our National office, we have the ability to serve individuals in 140 different languages by accessing translation services.


Call 800.272.3900 to speak with a trained Helpline specialist who will provide emotional support and appropriate referrals to local resources in the 23 counties served by the Association. All calls are confidential.



Alzheimer's Foundation of America

The Alzheimer's Foundation has some great information and resources, as well as a support hotline that is available 24/7 for people who need immediate assistance and advice.
Reach Out for Care…..866.AFA.8484 or 866.232.8484

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